I hope my story helps anyone out there just starting the process. He schedules appointments with a Radiologist and two local surgeons. Over 80,000 specimen cases are seen at Johns Hopkins each year. "We were surprised by the relatively large percentage of men who obtain second opinions for their prostate cancer," said lead author Dr. Archana Radhakrishnan of Johns Hopkins University in . Thankfully, prostate cancer is extremely slow growing. Have been told a health condition is not treatable. Does that mean my Gleason Score based on my biopsy would be less than a Gleason 6? Any input on this would really be appreciated. To schedule an in-person visit for a second opinion or to determine if a telemedicine consultation is possible, call: In addition to cancer, our urologic team provides second opinions regarding urinary stone disease, urinary tract reconstruction, incontinence, male infertility and sexual health, and many other urologic conditions or procedures. This condition causes pain in the lower back and groin area, and may cause urinary retention. Urologists at the Johns Hopkins Brady Urological Institute can make the difficult process of deciding on a treatment plan easier. T2W MRI score= 2, DW MRI score= 3, DCE MRI score=positive How much is the fee for an opinion of my recent MRI? I understand that patient privacy is a priority (I'm actually a privacy lawyer), but surely there are patients who would give consent and be happy to talk with a prospective patient about their experiences? Getting a second opinion from us is easy, convenient, and all done remotely. These findings are suspicious for degenerative changes however a subtle/early metastatic lesion cannot be excluded and continued periodic follow-up is recommended." Generally, the symptoms can stabilize over time. Targeted MR/Fusion biopsy of one 4x8 mm lesion on Right side showed 3+3 in 2 of 5 cores (20% of total volume), and random Right side: 1 core 3+4 (10%, 20% on second opinion from Johns Hopkins) and 1 core 3+3 (10% volume) ; Left Side 1 core 3+3 (10%, no PCa on second opinion from Johns Hopkins). I am 62 years old. We can help with your case. We are vaccinating all eligible patients. Doctors can review their peers treatment suggestions and explain why they agree or disagree. Over kill and redundancy I know, but it's my money, my prerogative. However, before getting a second opinion, its best to check with your insurance company to see if there are any limitations in coverage. Netto says patients should be proactive in requesting that doctors take another look. Associated fees may be incurred up to $1,800 in a minority of more complicated cases requiring special studies. Do I need a third opinion? Therefore, the value of these second opinions remains unknown. The best protection for cancer patients who are Health Maintenance Organization members is to seek a second opinion even if she or he has to pay for it. * Prostate volume: 22 cc Men with a college education or beyond also were more likely to cite wanting more information about their cancer as a motivation for a second opinion . However, there are other cases when a second opinion results in a very different diagnosis or set of treatment recommendations. I've also read that some study's have shown that intraductal may be resistant to hormonal therapy, radiation and/or chemo. In those cases, patients are tremendously grateful for having received the advice and encouragement to get a second opinion, Dr. Matasar adds. Bones: There is marketed marrow heterogeneity in the pelvic bones are not in the femoral heads. Contact us or find a patient care location. Need guidance choosing from multiple treatment options. The site is secure. of tumor in the rectal prostatic angles. This may include imaging, blood tests, prior treatment, and pathology reports. First 6 week PSA is undetectable. SO. Epstein, who views about 12,000 slides a year, called for calm in my case and suggested another biopsy in six months. If I am rested, I find that I am more ready than if I am not. I met with the radiologist 3/17 and he leans toward an IMRT radiation regimen of 5 or 20 sessions TBD combined with ADT (6-month shot but maybe 4 months was enough). Note respondents were able to, MeSH Us Too Prostate is a great club and many of you have helped me a lot already. The purpose of starting this discussion is to gather peoples thoughts and opinions and actual experiences with Prostate Focal Laser Ablation. Younger men were more likely to cite wanting more information about their cancer and to see the best doctor as the reason to seek a second opinion . Instead, I did my homework. A total of 2386 men responded to the survey (adjusted response rate, 51.1%). Read books and realize as soon as they are published, they are outdated. By choosing the first doctor you speak with to be your treating physician, you may be putting your health in the hands of someone who lacks the expertise to accurately and safely treat your prostate cancer. Wondering if any of the "gurus" here want to take a stab at looking at this and see if they agree that it says what I think it says (I will be following up with doctor(s) to get their opinion, and I waive all HIPAA rights by allowing this to be seen). Receiving a second opinion was not associated with perceived quality of prostate cancer care. doi: 10.1136/bmjopen-2020-044033. Overall, nearly 80% of men received definitive treatment 76.5% of men who obtained a second opinion from a urologist received definitive treatment compared to 81.6% who did not . They agreed with the PI-RADS 4. __________________________________________________________________________July 2022I've neglected to make journal entries for a couple years, so I will recap below and continue with what I have done and what I have learned.In 2018, at the age of 48, after a routine physical that showed a PSA of (4.X) and after a TRUS biopsy, I was diagnosed with PCa. They seem to think it'll do the trick.I feel great and I am glad I chose this treatment path. Mohamad Allaf, M.D., answers questions about prostate cancer diagnosis and treatment options and discusses robotic prostatectomy at Johns Hopkins. There is no bony or bulky nodal disease in the pelvis You may also complete an online appointment request form and we'll respond to schedule an appointment. We had the 3T MRI (no coil) and MRI guided biopsy at Sperling in NY, and then had a 2nd Opinion done by Johns Hopkins. Radhakrishnan A, Grande D, Mitra N, Bekelman J, Stillson C, Pollack CE. There are three main types of doctors that manage prostate cancer: urologists, radiation oncologists, and medical oncologists. I will say, the people I dealt with at Johns Hopkins were extremely nice and professional. JHs just said it was minimal less than 5%. Another type of prostate issue is chronic prostatitis, or chronic pelvic pain syndrome. Im immediately referred to Urologist. (The pathology report from Cedars-Sinai kept my diagnosis at 3+4, but a second opinion at Johns Hopkins upgraded me to 4+3.) Include Your Primary Care Physician as Member of Your Treatment Team. If pain is present, a digital rectal examination will reveal hard areas. 1: Prostate, right lateral apex 2011 Feb;29(1):3-9. doi: 10.1007/s00345-010-0602-y. In other words, can I have a team here in Wisconsin yet travel elsewhere to get my MRI? 2. Your current doctor will frequently suggest a second opinion, if only to confirm the recommended course of action. To learn more about how to get a Neuropathology second opinion, please visit our Neuropathology Division second opinions website. This approach helps to decrease side effects that can affect a patients quality of life, such as erectile dysfunction, incontinence or other urinary-tract symptoms. Get a Second Opinion In the United States, prostate cancer is among the most common cancers found in men. There is no extraprostatic extension. the transition zone. 7. Prostate dimensions: 4.1 x 2.8 x 3.4 cm (TZ) One suspicious area - lesion size: 2cm x 1.4 cm Second Opinion Results, Johns Hopkins biopsy reading of 2 slides sent by Sloan: For this study, published in the journal Cancer, 2386 men in the greater Philadelphia area, who were diagnosed with prostate cancer between 2012 and 2014, responded to survey questions. It starts many years ago. Benign fibromuscular stroma; no prostatic glands are identified Spent the night in hospital with very little pain after the first couple of hrs. While the size of an enlarged prostate will influence the extent of urinary symptoms, men may experience a range of urinary symptoms. Recently diagnosed a Gleason 3 + 3. A biopsy was performed on 2/26. HMOs usually try to diagnose and treat patients within their system because the more money the HMO spends on second opinions and treatment outside the HMO, the less money there is available for operation costs and profits. PI-RADS v2 score: 5. * Adjacent organ invasion: None. At Johns Hopkins, you can feel confident knowing our multidisciplinary cancer clinics combine the very best resources and specialists all within in a single location for a highly coordinated experience that delivers exceptional care while conserving time, money and energy. The .gov means its official. MRI June 2017 again at SMIL. They basically said it didn't matter. A blocked urethra can also damage the kidneys. If you choose to be treated at Johns Hopkins, you may be able to begin treatment immediately. !I'll try editing a previous post and see if it reads like a journal instead of creating a new thread every update.I just got my PSA results and the numbers are still trending in the right direction. When I was diagnosed I really thought that I will live only 2 years. Benign prostatic tissue I had a 3T mp MRI with coil bed, without and with contrast, at Emory on March 3. Of course, my old school Urologist recommended surgeryHe, of course, knew the best robotic surgeons around.Anyway. I have been drinking out of an information fire hose. While the size of an enlarged prostate will influence the extent of urinary symptoms, men may experience a range of urinary symptoms. His second opinion just came back. Pingback: PROSTATE PROS Episode 6: Breakthroughs in Radiation PROSTATE ONCOLOGY SPECIALISTS, Pingback: Like Man, Im Tired (Of Waiting): The How-to Guide for Men with Prostate Cancer PROSTATE ONCOLOGY SPECIALISTS, Your email address will not be published. Following application of the relevant exclusion criteria, 2365 respondents remained in the analytical cohort. The total number of cores with carcinoma is 3 Prostate Cancer Grading: You're more likely to develop prostate cancers that are more likely to spread. A newly published paper by Fischer et al. You May Like: Sbrt Radiation Therapy Prostate Cancer. Some men have minimal or no symptoms at all. 2016 American Cancer Society.

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